11Aprile 2025 sarà la Giornata Mondiale del Parkinson
#SparktheNight for Parkinson's Awareness
Un simbolo per dare una voce
In vista della Giornata mondiale del Parkinson dell'11 aprile, un collettivo di organizzazioni in tutto il mondo sta lanciando un'iniziativa "" per unire i membri della comunità.
Il logo, lanciato da una collaborazione di importanti organizzazioni nel mondo, per dare Voce e visibilità a questa condizone di cui si vede solamente la punta di un iceberg
Collectively, we have contacted and applied for 591 buildings, bridges or iconic landmarks worldwide, which is a good start. Our goal is 650 locations lit up, so we'll need to approach 2,000 or so locations because for many different reasons, some never respond or say "no." We currently have 142 confirmed sites; 10 from the UK, 48 from Australia and 84 from the USA.There are just 66 days to go which means we need to get requests in quickly. Many buildings and landmarks want a two-month notice, if not more!
Insieme al momento, abbiamo contattato e fatto richiesta per 591 edifici, ponti o punti di riferimento iconici in tutto il mondo, un buon inizio! Obiettivo è di illuminare 650 luoghi, quindi dovremo contattarne circa 2.000 perché, per diversi motivi, alcuni non rispondono mai o dicono “no”. Al momento abbiamo 142 siti confermati; 10 dal Regno Unito, 48 dall'Australia e 84 dagli Stati Uniti. Mancano pochi giorni alla scadenza, il che significa che dobbiamo far pervenire le richieste rapidamente.
Se hai bisogno di aiuto ad iniziare contatta AIGP all'indirizzo Questo indirizzo email è protetto dagli spambots. È necessario abilitare JavaScript per vederlo.
or Carolyn Wilson Questo indirizzo email è protetto dagli spambots. È necessario abilitare JavaScript per vederlo. per conoscenza.
Ci piacerebbe che più Paesi e città si aggiungessero e confermassero i siti nel loro territorio. Anche una sola richiesta o conferma significa molto per lo sforzo complessivo.
I would love to see more countries reaching and confirming sites. The first one is often the hardest. Even one request or confirmation means so much to the overall effort.
Link utili:
* Foglio di monitoraggio di Google: Tenetelo aggiornato con le colonne APPLIED e ACCEPTED. È fondamentale sapere chi è già stato contattato per evitare di fare il doppio lavoro. Link al foglio di monitoraggio
* Lettere modello: Richiesta iniziale, Richiesta di stato in sospeso, Promemoria, Grazie.
* Dropbox per le immagini blu accettate: Avete trovato un'immagine illuminata di blu? Caricatela qui utilizzando il formato del nome del file: Paese-Regione/Stato/Provincia e nome del punto di riferimento:Link Dropbox
* In caso di perdita: Rapporti mensili precedenti con ulteriori suggerimenti Cartella Rapporti sullo stato del mese
Come promemoria:
* Il Parkinson è la malattia neurodegenerativa in più rapida crescita al mondo.
* L'anno scorso abbiamo avuto una risposta incredibile e potete vedere questo breve video che illustra la campagna 2024, alla quale hanno partecipato centinaia di punti di riferimento. Sentitevi liberi di includere i link nei vostri messaggi.
* Per il 2025, il nostro obiettivo è di accendere 11,8 milioni di luci per gli 11,8 milioni di persone affette da Parkinson.
* Il colore richiesto si chiama “Medium Blue” (HEX 0000CD, RGB 0,0,205).
Helpful Links:
- Google Tracking Sheet: Please keep this up to date including APPLIED and ACCEPTED Columns. It is imperative we know who has already been approached so we don't double-up. Tracking Sheet Link
- Template Letters: Initial request, Pending status request, Reminder, Thank you
- Dropbox for Accepted Landmark Blue Pictures: Have you found a picture lit in blue? Please upload it here using the file name format: Country-Region/State/Province and landmark name:Dropbox Link
- In Case You Missed It: Prior monthly status reports with more tips Monthly Status Reports Folder
As a Reminder:
- Parkinson's is the fastest growing neurodegenerative disease in the world.
- Last year, we had an incredible response, and you can check out this short video showcasing the 2024 campaign, where hundreds of landmarks participated.Check out the still photos here. Feel free to include links in your pitches.
- For 2025, our goal is to light up 11.8 million lights for the 11.8 million people living with Parkinson's.
- The color we are requesting is called “Medium Blue” (HEX 0000CD, RGB 0,0,205)
Why Blue?
Lighting up buildings and landmarks in blue for Parkinson's awareness carries a deep symbolism that resonates with the Parkinson's community and its mission.
1.Global Unity: The color blue is often associated with harmony, trust, and unity. By lighting up prominent structures in blue, it symbolizes a global coming together to support and raise awareness for Parkinson's disease. It conveys a message of solidarity among individuals, organizations, and communities worldwide in the fight against Parkinson’s.
2.Hope and Optimism: Blue is also a color that represents hope and optimism. For those living with Parkinson's disease, as well as their families and caregivers, the act of illuminating landmarks in blue signifies a beacon of hope for better treatments, increased understanding, and ultimately a cure for Parkinson’s.
3.Visibility and Awareness: Blue is a striking color that attracts attention. By bathing iconic buildings and landmarks in blue light, it draws public awareness to Parkinson's disease and helps spark conversations about the challenges faced by those living with the condition. This visibility is crucial in educating the public and reducing stigma around Parkinson’s.
4.Recognition and Respect: When significant landmarks are bathed in blue light for Parkinson's awareness, it sends a powerful message of recognition and respect to the Parkinson's community. It acknowledges the strength and resilience of individuals living with Parkinson's, as well as the efforts of researchers, healthcare professionals, and advocates working tirelessly to improve quality of life and find a cure.
Thank you for your dedication and hard work. Let's continue to push forward and make this year's campaign a resounding success a hit out LOUD
1. Unità globale: Il colore blu è spesso associato all'armonia, alla fiducia e all'unità. Illuminando di blu le strutture più importanti, simboleggia un'unione globale per sostenere e sensibilizzare sulla malattia di Parkinson. Trasmette un messaggio di solidarietà tra individui, organizzazioni e comunità di tutto il mondo nella lotta contro il Parkinson.
2. Speranza e ottimismo: il blu è anche un colore che rappresenta speranza e ottimismo. Per coloro che vivono con la malattia di Parkinson, così come per le loro famiglie e i loro assistenti, l'atto di illuminare di blu i punti di riferimento significa un faro di speranza per trattamenti migliori, una maggiore comprensione e, infine, una cura per il Parkinson.
3. Visibilità e consapevolezza: Il blu è un colore che attira l'attenzione. Immergendo edifici e punti di riferimento iconici nella luce blu, attira l'attenzione del pubblico sulla malattia di Parkinson e contribuisce a stimolare le conversazioni sulle sfide affrontate da coloro che vivono con questa patologia. Questa visibilità è fondamentale per educare il pubblico e ridurre lo stigma nei confronti del Parkinson.
4. Riconoscimento e rispetto: Quando punti di riferimento significativi sono illuminati di blu per la consapevolezza del Parkinson, si invia un potente messaggio di riconoscimento e rispetto alla comunità del Parkinson. Riconosce la forza e la resilienza delle persone che convivono con il Parkinson.
Grazie per la dedizione e per il tuo tempo che donerai a questa iniziativa. Continuiamo a guardare avanti e facciamo in modo che la campagna di quest'anno sia una richiesta ad ALTA VOCE
Le organizzazioni globali del Parkinson si uniscono per lanciare "The Spark" - un nuovo logo internazionale per aumentare la consapevolezza della Giornata Mondiale del Parkinson
Una serie di organizzazioni mondiali del Parkinson hanno unito le loro forze per sviluppare e lanciare un nuovo logo - soprannominato "The Spark" - prima della Giornata Mondiale del Parkinson dell'11 aprile. Il logo è un tentativo di permettere alla comunità del Parkinson di parlare con una sola voce e creare un simbolo universale del Parkinson.
The Spark è il risultato di una collaborazione attiva tra le organizzazioni internazionali del Parkinson, tra cui Parkinson Europe , PD Avengers, Parkinson's Foundation, Davis Phinney Foundation, Brian Grant Foundation Cure Parkinson's tra queste anche la nostra Associazione Parkinson Giovani.
Qualsiasi organizzazione, individuo o gruppo che voglia evidenziare e sostenere l'annuale Giornata Mondiale del Parkinson potrà utilizzare The Spark sul proprio materiale promozionale per qualsiasi evento, campagna o comunicazione nell'ambito della giornata.
The Spark si ispira alla dopamina - il neuro trasmettitore elettrochimico che le persone con Parkinson si sforzano di conservare. Il gruppo di organizzazioni mira a questa scintilla per energizzare la comunità del Parkinson intorno a un evento annuale più coordinato della Giornata Mondiale del Parkinson, riunendo alla fine organizzazioni e individui sotto un unico ombrello riconosciuto che porterà a una maggiore consapevolezza, impatto e, infine, a un cambiamento positivo.
https://www.worldparkinsonsday.com/
More than 80 Parkinson’s Disease organizations and thousands of advocates from 83 countries announce the launch of ‘The Spark,’ a new international symbol for Parkinson’s awareness, to increase conversation and public awareness around the world’s fastest growing neurological disease. The symbol will be promoted and shared around the world during World Parkinson’s Day on Monday, April 11, 2022. The Spark, inspired by dopamine – a critical electro-chemical neurotransmitter that people with the disease are striving to retain – will be used to energize a global movement and inspire urgency, unity and hope to end Parkinson’s Disease.
“The who’s who of Parkinson’s combine forces under a new symbol to keep the disease top of mind for everyone. The Spark is intended to electrify a powerful movement changing how all of us think about this disease. We want to break the stigma around Parkinson’s. We’re leading a louder call to fund medical breakthroughs. And together – we’re striving to put Parkinson’s in the past,” said Larry Gifford, founder of Global Alliance to End Parkinson’s Disease (also known as the PD Avengers).
The increasing impact of Parkinson’s on individuals, families and the global community cannot be ignored.
- Parkinson’s Disease is the fastest growing neurological condition in the world.
- Parkinson’s is indiscriminate regarding gender, sex, ethnicity, age and geography.
- Up to 10% of People with Parkinson’s are diagnosed in their 40’s or younger.
- Parkinson's is caused by a combination of genes, environmental and lifestyle influences. The interaction of all three components determines if someone will develop Parkinson&.
- Currently, there is no cure.
- The herbicide and pesticide Paraquat is among the toxins linked to increased risk of the onset of Parkinson’s disease. It’s banned in dozens of countries including China and the UK, where they continue to manufacture the product. While a teaspoon is lethal for a human being, more 7-million pounds of Paraquat were used on crops in the United States in 2015 and that number is steadily increasing year after year.
- Parkinson’s is a misunderstood disease and the lack of awareness makes people with Parkinson’s vulnerable and discriminated against. People with Parkinson’s earn less money, have difficulty obtaining and retaining employment despite qualifications and ability. They often have to retire early. The symptoms of the disease, mean people with the disease are often mistaken for being intoxicated and in some countries are considered to be cursed by witches. Many live in constant pain. They often lose their voice, their confidence, the luxury of sleep and their ability to control their automatic functions, their limbs, and their future.
SHARE YOUR SPARK ON WORLD PARKINSON’S DAY
This World Parkinson’s Day, we are calling on those impacted by the disease to stand up, speak out and unite to end Parkinson’s. People can join our movement by sharing The Spark with friends, family and on social media channels on Monday, April 11, 2022.
Every organization, individual or group who want is encouraged to share The Spark in their campaign, event or communications around World Parkinson’s Day and beyond. The Spark toolkit can be downloaded here worldparkinsonsday.com. People can either personalize The Spark or share one of dozens of pre-made graphics.
ABOUT THE SPARK’S DEVELOPMENT
The Spark was conceived by a coalition of global patient and advocacy organizations who are all seeking to end Parkinson’s Disease.
“The EPDA is incredibly proud to be a part of this very unique global coalition of Parkinson’s organizations. We all have the same goal: for the ’Spark’ logo to, over time, help the Parkinson’s community speak with one voice on World Parkinson's Day – thereby amplifying our own individual voices, and creating a bigger impact globally year after year. People with Parkinson’s and their families cannot wait for change to happen to them. We need to create that change ourselves, and we hope this logo will be an important step in that direction,” said Dominic Graham, Operations Director, European Parkinson’s Disease Association (EPDA).
“We know the power of the Parkinson’s community cannot be understated. It’s the spark of the community coming together in a multitude of ways, including through this global alliance of Parkinson’s organizations, that has transformed Parkinson’s research into what it is today. And it’s this community coming together that will help realize new breakthroughs that are right around the corner for people and families with Parkinson’s,” said Debi Brooks, CEO and Co-Founder of The Michael J. Fox Foundation for Parkinson’s Research.
“Parkinson’s s the fastest growing neurological condition in the world and it needs to be recognised as an urgent health priority. I hope that this year’s World Parkinson’s Day will be the spark that creates a sense of urgency within international health agencies, governments, and leads to significant investment in to research for treatments that change the progression of Parkinson’s. It is time to end Parkinson’s,” said Helen Matthews, Deputy CEO, Cure Parkinson’s The Spark was designed in partnership with Franklyn (franklyn.co), a creative studio based in Brooklyn, New York. The six-month effort was comprehensive and engaged a global community of PD patients and advocates.
“This was a tall task as whatever symbol we crafted for the global PD community had to be simple, urgent, and tied to the disease itself. Creating a logomark that is also customizable and truly ‘open-source’ – anyone can download it, draw it, draw on it and use it to tell their own stories – is also what makes it powerful, personal and deeply emotional,” said Michael Freimuth, the Co-Founder of Franklyn.
To share The Spark and join the movement to end Parkinson’s, visit worldparkinsonsday.com.
PARTNER ORGANIZATIONS
Organizations which are supporting The Spark include (in alphabetical order):
- 1. Alianza Iberoamericana de Parkinson – Spanish speaking nations
- 2. American Parkinson’s Disease Association (APDA) – United States
- 3. APDA – Massachusetts – United States
- 4. APDA – Northwest – United States
- 5. Associazione Italiana Giovani Parkinsoniani – Italy
- 6. Asociația "Mai puternici decât boala Parkinson" - Romania
- 7. BC Brain Wellness Program - Canada
- 8. Brian Grant Foundation – United States
- 9. Canadian Open Parkinson Network - Canada
- 10. Charco Neurotech - UK
- 11. Comitato Italiano Associazioni Parkinson - Italy
- 12. Con P de Parkinson - Spain
- 13. Cure Parkinson’s - UK
- 14. Davis Phinney Foundation for Parkinson’s | Every Victory Counts – United States
- 15. Deva Antiparkinson Association, with Raican Dan (Romania)
- 16. Empower Parkinson’s
- 17. Ending Parkinson’s Disease book – United States, Netherlands
- 18. European Parkinson’s Disease Association (EPDA) - Europe
- 19. Estraidons-Nous - Canada
- 20. Fuerto es la Vida, Parkinson – No Limits - Spain
- 21. Hilde-Ulrichs-Stifting – Actives Leben mit Parkinson - Germany
- 22. Impact Parkinson - Canada
- 23. iPDGC – International Parkinson Disease Genomics Consortium – Africa
- 24. It’s Not Funny - Australia
- 25. Latin America Research consortium on the Genetics of Parkinson’s Disease (LARGE-PD)
- 26. Life Design Institute for PwP – Japan
- 27. LSVT Global – United States
- 28. Mediflix – United States
- 29. Nuero Heroes - UK
- 30. Pacific Parkinson’s Research Centre (University of British Columbia) - Canada
- 31. Pacific Parkinson’s Research Institute - Canada
- 32. Parkinson Art - UK
- 33. Parkinson Association of Alberta - Canada
- 34. Parkinson Canada - Canada
- 35. Parkinson Nova Scotia - Canada
- 36. Parkinson Society of British Columbia - Canada
- 37. Parkinson Society of Southwest Ontario - Canada
- 38. Parkinson UK - UK
- 39. Parkinson’s Africa - Africa
- 40. Parkinson’s Association of West Michigan – United States
- 41. Parkinson’s Australia - Australia
- 42. Parkinson’s Concierge - UK
- 43. Parkinson’s Disease Patients Welfare Society – Kolkata - India
- 44. Parkinson’s Foundation – United States
- 45. Parkinson’s International Foundation – United States
- 46. Parkinson’s Place
- 47. Parkinson’s Resources serving Oregon and SW Washington – United States
- 48. Parkinson’s UK – UK
- 49. Parkinson’s Unity Walk – United States
- 50. Parkinson’s Wellness Project (PwP) - Canada
- 51. ParkinSong – Austria
- 52. Parkinsonsonline.at - Austria
- 53. Parkylife - UK
- 54. PD Avengers Scotland - UK
- 55. PD Avengers Puerto Rico – Unincorporated United States
- 56. PD Buzz – United States
- 57. PD Warrior - Australia
- 58. PMD Alliance - Parkinson and Movement Disorder Alliance – United States
- 59. Power Over Parkinson’s – United States
- 60. Rosy Gallery - Japan
- 61. Schluss mit Parkinson – Germany
- 62. Shake It Up – Australia
- 63. Shaky Nation – United States
- 64. Sport Parkinson’s - UK
- 65. Spotlight YOPD - UK
- 66. Stop Parkinson Romania - Romania
- 67. StoPD - New York and Los Angeles
- 68. Surrey Neuroplasticity Clinic - Canada
- 69. The Michael J. Fox Foundation for Parkinson’s Research – United States
- 70. The Parkinson’s Alliance
- 71. The Parkinson’s Games – 2022 – Eindhoven - Netherlands
- 72. Tightrope Improv – Improv for Parkinson’s - Canada
- 73. Trepetlika - Slovenia
- 74. Twitchy Woman – United States
- 75. University of Dundee MRC – Scotland - UK
- 76. Unshakeable MD - Canada
- 77. U-Turn Parkinson’s – Canada
- 78. Voice Aerobics - Canada
- 79. When Life Gives You Parkinson’s podcast - Canada
- 80. WikiParky.TV – Italy
- 81. Womens Parkinson’s Project
- 82. World Parkinson Coalition – United States
- 83. World Parkinson Program – Canada
- 84. Yes, and Exercise! – United States
- 85. Yuvedo Foundation – Germany
We encourage all media to use The Spark and the digital assets found here, to help debut the symbol to audiences worldwide beginning April 1st, on World Parkinson’s Day and as a symbol of Parkinson’s Awareness when appropriate throughout the year.
